Living with fibromyalgia is extremely difficult, as millions of patients around the world can testify. The fact that physical and emotional pain is not visible to others can often make it even more difficult. Fibromyalgia is known as an “invisible disease” because painful and often debilitating side effects are often not visible to others.
A person with fibromyalgia may look good in the open air but suffers from excruciating pains inside. Understanding this fact is important for those seeking to support a friend or family member of someone with fibromyalgia.
While it is often difficult to find words to support and hope for those who suffer from fibromyalgia, here is a list of 5 things that certainly does not mean that someone has fibromyalgia. We don’t think we can say anything better than one of these 5 things.
# 1 “You don’t look sick”
This comment shows a complete lack of understanding of invisible diseases. Not all serious illnesses are accompanied by obvious symptoms, such as being in a wheelchair. People with fibromyalgia have often learned coping mechanisms and can use their limited energy every day to try to be more normal for others. But the pain is still there. And even referring to a person with fibromyalgia, they claim to be able to compromise.
# 2 “It must be nice not having to work”
Uh, no … it’s not. The vast majority of those suffering from fibromyalgia would do anything to regain their independence and ability to work full time.
The suggestion that it was not possible to work was a choice or that they were just lazy, incredibly insulting.
# 3 “I heard that fibromyalgia is not a real disease”
You have already felt the evil. The cause of fibromyalgia is still under study and the numerous studies are based on other health problems due to the lack of historical understanding. But this does not mean that it is less real for almost 6 million people with fibromyalgia in the United States.
Fibromyalgia was officially recognized as a real disease in the United States last year when it received its diagnostic code and was recognized for many years by FDA social services and the National Security Administration.
# 4 “You just have to train more and be more active”
If it were that simple In fact, many fibromyalgia patients push the limits of their physical abilities by getting up and showering every day.
Many find relief in yoga or other light aerobic exercises. But often, the type of effort associated with training is not an opportunity.
# 5 “Everything is in your head”
We kept the worst for last. Actually no, not everything is in my head. Pain and fatigue are present throughout the body and sometimes I feel that my hair hurts too! Yes, it’s so ugly and the fact that you can’t see my pain doesn’t mean it’s not a physical condition. Stress, anxiety and depression can aggravate all symptoms of chronic pain, but not cause pain.
If you came here, chances are you have fibromyalgia or someone really wants to understand fibromyalgia to support someone they love. Soft springs for you if you are the first and grateful if you are the last.