If you love someone with fibromyalgia, you experience severe pain that varies from day to day and from one hour to another. We cannot predict that. So we want you to understand that sometimes things have to be canceled at the last moment and it bothers us as much as you do.
We want them to know that we must learn to accept our body with its limits, and it is not easy. There is no cure for fibromyalgia, but we try to relieve symptoms every day. We ask not to suffer from this.
Many times we feel overwhelmed and cannot cope with more stress than we are. If possible, do not add more stress to my body.
Although we see well, we do not feel well. We have learned to live with constant pain most of the time. When you see us happy, it doesn’t necessarily mean we don’t have problems, we just take care of it. Some people think that we cannot be so bad if we are good. The pain is not. It is a chronic “invisible” disease and it is not easy for us to have it.
Please understand, because we cannot work and we are not lazy. Our fatigue and pain are unpredictable and because of this we have to make adjustments in our lifestyle. Something that seems simple and easy to do is not for us and can cause us a lot of fatigue and pain. Not necessarily something we did yesterday, we can do it today, but that doesn’t mean we can’t do it either.
Sometimes we are depressed. Who would not be depressed by strong and constant pain? It has been found that depression occurs with the same frequency in fibromyalgia as in any other chronic pain condition. It gives us pain to be depressed, but we are depressed by the pain and inability to do what we have used. We also feel bad when there is no support or understanding from doctors, family and friends. Please understand me, with your support and your help on my pain.
While we sleep through the night, we don’t get enough rest. People with fibromyalgia have poor sleep quality, which makes the worst pain of the day worse.
For us, it is not easy to stay in one position (although the seats) for a long time. It causes us many problems and it takes time to recover. Why not leave some activities, we know that this factor would harm us. Sometimes we are well that we know the consequences it will bring.
We don’t go crazy if sometimes we forget simple things, what we say, someone’s name or the wrong word. These are cognitive problems that are part of fibromyalgia, especially on the days when we have a lot of pain. It is a strange thing for you and me. But we laugh together and help maintain our sense of humor.
Most people with fibromyalgia are very familiar with this condition, some doctors and others, because we have been forced to educate ourselves to understand our body. So, please, if you offer me a “cure,” don’t do it. Not because I don’t appreciate your help or improvement, but because I stay informed and have tried many things.
We feel very happy when we have a day with little or no harm when we sleep, when we do something that we have not achieved in a long time, when we understand.
We really appreciate everything you’ve done and can do for me; Including your efforts to inform and understand. Little things mean a lot to me and I need you to help me. Be kind and patient. Remember that in this body still tired, I am still. I try to learn to live day by day with my new limits and keep hope tomorrow. Help me laugh and see the wonderful things God gives us.