One of our closed group members shared this story with us and asked us to publish it to spread the knowledge of our disease. This is what you should know about people with fibromyalgia.
1. My pain
My pain is not your pain. It is not caused by inflammation. Taking your medicine for arthritis will not help me. I can not work my pain or shake it out. It is not even a pain that remains. Today it is on the shoulder, but tomorrow it may be on its feet or it may be gone. My pain is believed to be caused by incorrect signals sent to the brain, possibly due to sleep disorders. It is not well understood, but it is real.
2. My fatigue
I am just tired. I am often in a serious state of exhaustion. You may want to participate in physical activities, but I can not. Please, do not take it personally. If you saw me shopping at the mall yesterday, but I can not help you with the gardening work today, it’s not because I do not want to. I am, most likely, paying the price for emphasizing the muscles beyond their capacity.
3. My forgetfulness
Those who suffer from it call Fibronzebla. I may not remember his name, but I have to remember. You may not remember what I promised to do for you, even though you told me just a few seconds ago. My problem has nothing to do with my age, but it can be related to lack of sleep. I do not have a selective memory. On some days, only I do not have any short-term memory at all.
4. My clumsiness
If I step on your toes or mop you up five times in a crowd, I’m not purposely targeting you. I do not have muscle control for that. If you are behind me on the stairs, please be patient. These days, I take life and the stairs one step at a time.
5. My sensitivities –
I can not stand it! “It” could be any number of things: bright sunlight, loud or sharp noises, smells. FMS has been called the “mess everything that aggravates.” So do not make me open the curtains or listen to your child scream. I really can not stand it.
6. My intolerance
I can not stand the heat, either. Or humidity. If I am a man, I sweat … profusely. If I’m a lady, I sweat. Both are equally embarrassing, so I do not feel compelled to point this deficiency at me. I know. And do not be surprised if you shake uncontrollably when it’s cold. I do not tolerate the cold, either. My internal thermostat is broken, and nobody knows how to fix it.
7. My depression
Yes, there are days when I would prefer to stay in bed or at home or die. Severe and unrelenting pain can cause depression. Your sincere concern and understanding can throw me off the edge. Your sarcastic comments can tip me over the edge.
8. My stress
My body does not handle stress well. If I have to quit my job, work part-time, or manage my household responsibilities, I’m not lazy. The daily stresses worsen my symptoms and can completely incapacitate me.
9. My weight
It may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My Brain Center is broken, and nobody can tell me how to fix it.
10. My good morning
If you see me smiling and functioning normally, do not assume I am like that. I suffer from pain and fatigue chronic disease that has no cure. I can have my good morning, weeks or even months. In fact, good days are what keep me going.
11. My uniqueness
Even those who suffer from FMS are not the same. That means that you do not have all the problems mentioned above. I have pain above and below the waist and on both sides of my body that has lasted a long time. You may have migraines or pain in your hip or pain in your shoulder or knee pain, but they do not have exactly the same pain as any other person.
12. My Disability
My disability is invisible but it still exists. Its same like you dont see the air but it is present same goes with fibromyalgia, its exist , its real . Its not all in our heads, if it was then why wouldn’t i put something in my head which is more recognize like cancer etc. Lets put this Fibromyalgia disability sticker on your cars and spread fibro awareness.