If your loved one has fibromyalgia, it is difficult to understand exactly what they were going through unless you have experienced it for yourself. It is likely that they require much more time sleeping or resting on what they can and not feeling very often. Fibromyalgia can also inhibit a person’s ability to work, perform household chores or even do everyday things such as bathing and eating.
If you have a spouse or other important support that makes all the difference. It is not that we have pain and they are exhausted. It changes your life You are not the same physically or mentally (my anxiety) so many things are gone. I know that everyone feels the same way.
If one person is a chronic disease, but the other is healthy, it can easily put pressure on even the strongest of relationships. While it may be harder to put the other in your place or find a balance in which you want to feel like equal partners in the relationship, it is certainly not impossible – and for many couples who face obstacles together as a chronic disease can in Reality strengthen your relationship and deepen your love for others.
We ask our community “Living with Fibromyalgia and Chronic Diseases” and “Living with Fibromyalgia” to share ways for people to help their spouse or partner with fibromyalgia. If your loved one is affected by a chronic disease such as fibromyalgia, FC, perhaps the following ways can help you better understand what you experience and provide some ideas of things you could do that could mean the world to them.
This is what our community told us:
1. When you are having a merger, keep them, by not crying and I know you are there for them.
2. Learn as much as you can about him. Be patient. You can not understand what it is, but bringing empathy and listening to your partner or spouse is so important. Unconditional love
3. Ask your partner to listen to you and read about people who also have fibromyalgia.
4. Avoid making them feel guilty. To trust and love. Be in bed and keep them, tell them that you are in it for the long term. And seriously!
5. Believe them first, being the second support, be kind at all times and third be worth your weight in the relationship in a practical way. They do not plan more than they did and that’s it, either in this together to help both of them to take most of the trip. The more support you have the sooner you will find your own level of fitness and health, but it takes some time and you will have to support them and reduce your physical and emotional burden as much as you can.
6. show love and do not ask too many questions in a bud moment
7. They draw a good hot shower, wash the hair, help them out, dry and brush the hair. Then just listening would be fine.
8. Be understanding, patient, household tasks share, be supportive when others question the veracity of the disease, remember that this disease is not fault or punishment for you. Above all, do not stop loving the affected person.
9. It’s not exactly what you want your love to do for you if the roles are reversed.
Above all, be kind, affectionate, patient and fun
10. Do not blame a lil sympathy and car maintenance. Sometimes I can only take care of myself … make dinner once a week. Vacuum cleaner or a clean shower. Remember that you can not get things from it, or I can not, ten pounds and I’m almost worn out
11. Do not just listen to what they are saying, but really listen!
12. Ask often in different aspects of pain, bring small things that help ice packs, medicines, drinks, heating pad … and they tell you how much you want to take it. Understand their struggles, do the research
13. fill gaps .. different forms of support, where there are deficiencies. It is deep expectations expressed so that you know and understand, then understand how it may be impossible to achieve. Be creative Help with pain or the need to sleep on weekends, but I want to clarify, comb the beach, looking for sea crystals, kayak although limited, volleyball (I can not) I personally believe movement is necessary to recover the tingling in the legs begin to put on the pain. If it feels like a cinnamon splint I pushed because I felt really good. I am painting the seat and windows that would lead to a normal healthy summer person. It will take me two. I’m fine with her. This is an example of low expectations continue to help achieve the goals that builds my esteem and strength.
14. Never say that he is lazy
15. Never cut them by not feeling good or not being able to do things they could do before. Be supportive, even if you do not understand everything.
16. Keep them out of stress situations. It allows them to rest when they need that.
If you can live somewhere in the barometric pressure does not change much pain EWH much!
17. There is a wonderful book called fibromyalgia for mannequins. My son read I do not know how many times. I really wanted to understand and help. My husband on the other left hand within a month.
18. When they tell me that I can feel the energy draining out of me like a needle blood draw please let me rest, because the flu sweats pain and brain fog are just around the corner.
19. Make sure they understand that although they can not work as before they continue to be a valued member of the family and are not a burden.
20. Ask your spouse what they would like you to do and let them know that you want to help in any way they can . Every little favor or help makes a difference for me, but they are all different. Some prefer the greatest possible independence. Many prefer to be done before automatically assuming what is desired or necessary. Offer to help or do things to help at home without asking after knowing what was wanted and needed. Some of us feel guilty for putting the burden on others.
Reassuring your spouse that you are there for them and do not mind helping and want to support and understand the best way possible can be a great relief to your spouse. I personally only like my feet massage with lotion. Other areas are very sensitive to massage. I need help at home, with purchases, etc. I need quiet environment to rest.
What would help your spouse? What would help your spouse feel-little better or more comfortable. I know that you can not fix or change the disease, but you can offer help and comfort. People often offer unsolicited advice that can make things worse, putting unrealistic expectations and putting more pressure on me. So I can be more depressed or feel guilt and unnecessary shame.
I hope this helps.